tag:blogger.com,1999:blog-2520456258844139120.post2778546302563115940..comments2024-01-29T10:48:50.298-05:00Comments on My Happy Stroke: Lost in SpaceGrace Carpenterhttp://www.blogger.com/profile/10920787306680792814noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2520456258844139120.post-51422943373158751752011-06-18T12:27:19.636-04:002011-06-18T12:27:19.636-04:00It used to be my whole left arm was lost in space,...It used to be my whole left arm was lost in space, but now it's just my hand. If I don't look at it, I can't tell where it is, if it's holding something or not. I have been working on a blog entry about this topic to try and answer people's questions about what it feels like. How do you explain something that feels like an absence? A lack of connection?Marcelle Greenehttps://www.blogger.com/profile/12677437160199036164noreply@blogger.comtag:blogger.com,1999:blog-2520456258844139120.post-65135816393752968242011-05-06T15:19:04.956-04:002011-05-06T15:19:04.956-04:00I'm really glad you explained this. On the ou...I'm really glad you explained this. On the outside, it really does look like you just have a small limp. We don't see all the work that your brain is doing, to move a part that you can't feel!Cindy Carpenterhttps://www.blogger.com/profile/03328876117331767350noreply@blogger.comtag:blogger.com,1999:blog-2520456258844139120.post-86300563268228703562011-05-04T10:34:00.184-04:002011-05-04T10:34:00.184-04:00in the mirrored wall at the Y, I watch myself and ...in the mirrored wall at the Y, I watch myself and am always dismayed at how my walk looks. I'm no longer using my brace, but that isn't the reason for my awkward gait. I can't bend my knee to raise my foot, so I'm pretty straight-legged.Barb Polanhttps://www.blogger.com/profile/14673025156245739311noreply@blogger.comtag:blogger.com,1999:blog-2520456258844139120.post-4545632251581185372011-05-03T10:40:17.040-04:002011-05-03T10:40:17.040-04:00As soon as I feel a little tired I lie down on my ...As soon as I feel a little tired I lie down on my bed with the bedspread pulled up and my clothes/shoes/brace on. If I catch fatigue in the early stage, ten minutes is enough to restore my breathing to a slow deep rhythm. If I tough it out until I'm really tired it takes 30 to 60 minutes to recover. I'm a warrior who uses pre-emptive strikes to keep fatigue at bay.Rebecca Duttonhttps://www.blogger.com/profile/09004104301521792927noreply@blogger.comtag:blogger.com,1999:blog-2520456258844139120.post-22880147323432956472011-05-03T09:30:01.298-04:002011-05-03T09:30:01.298-04:00That is really cool that Neil filmed you. It reall...That is really cool that Neil filmed you. It really must have felt odd to watch yourself. Soon you will have people looking at your limp and asking you how long it has been since your knee replacement. <br /><br />I have found my proprioception issues are improving a lot with time. If you figure out a solution for the tiredness please let me know!Lindahttps://www.blogger.com/profile/11714725782520722613noreply@blogger.com