A lot of survivors have problems with toes curling under, making walking painful and making it easy to trip (see posts from Home After a Stroke, Up Stroke, Dean's Stroke Musings). In contrast, when I walk, my toes on my affected (right) side barely make contact with the floor (other than the big toe). My toes go up, as if I am trying avoid getting a splinter.
Yet I do have a lot of spasticity everywhere, including in my feet. In some positions--often when I'm sitting up and putting on my socks, for instance--my toes often get all scrunched up, as you see in the photo on the right. (My unaffected side looks, well, normal and flat.)
I'm thankful that the position of my toes is not painful. It's also not causing me to trip. But I'm almost certain that it's affecting my gait for the worse.
When I ask different doctors some of these questions, I often get a shrug, literally or figuratively. Physical therapists are much better at answering these questions, but even PTs have been stumped about the toe issue.
But I still need answers to get better. Who will answer these questions?